Learn from yesterday, live for today, and hope for
tomorrow. – Unknown
Last time I wrote
(back in March), I had just started radiation, started Zometa infusions again,
and I was waiting to hear from the pharmaceutical companies about patient
assistance with the wickedly expensive drugs Dr. Sprawls wanted me to
start. I finished the radiation but
unfortunately didn’t see much benefit from it.
I’m doing the Zometa infusions monthly – they’re painless really, and
hopefully they are doing some good – what IS a pain is that they have SUCH a
hard time finding a vein for the IV. It
usually takes 3-4 tries, they usually end up in the back of the hand, and then
I can’t move my (right) hand/arm for the entire infusion (roughly 2 hours) for
fear the needle will pop out of the vein.
It’s minor, really. I guess I’m
just in a “whiny, complainy” mood today.
As for the drugs – good news there – I was approved for patient
assistance/compassionate need from both pharma companies and am getting both
drugs free for a year!
Some more good/bad
news – last time I had my blood drawn (at the end of June), one of my tumor
markers had gone down (yay!), but the other one had gone up…..again
(boo!). I have another blood draw at the
end of this month, and of course I’m HOPING for good news – I HOPE they both
went down! I have an appointment with
Dr. Sprawls on 8/29.
And yet some more
good news – we traded our Subaru (manual transmission) in on a Ford Focus
(automatic transmission), and I think getting rid of all that shifting has
helped my hip quite a bit. This past
week we also moved to a different campground – one with a swimming pool – and I’ve
been doing self-imposed pool therapy/exercises daily, which seems to be helping
significantly. After only 3 days, I’m
walking much better – still limping, still have pain, and still can’t do long
distances – but there is definite improvement.
Okay folks, I
guess I’m done rambling for today. Sorry
I’m not in a very cheery mood today, but I’m very optimistic it will get
better. Have no fear, most of the time I’m
still upbeat, positive, hopeful, and optimistic.
One day at a time……live
life to the fullest…….and enjoy every moment!
7 comments:
Hi aunt Suzy - it's so good to hear from you, even on a "feeling-crappy" kind of day! I'm glad to hear about the little things, like an automatic transmission & having a pool, and I hope they continue to make life easier - sometimes little things are super important! I love you SO much! - Emma
So good to read your words, Suzy. Know that we are thinking of you every day, sending positive thoughts your way. I hope the pain subsides and the swimming helps with your mobility.
We love you!
Donna and Stuart
Tomorrow is a new day, Suz'......and I know it will be a good one. Your attitude and stamina is amazing.....and it is what will get you through this. Wishing we could have some sister-time before October....just craving a big hug...oh, and a big glass of wine would be right after the big hug!! Thinking the best thoughts in the world for you right now.....!!
Love you tons!
We are thinking about you and loving you ALL the time, Suzy! Hope things are looking a lot rosier for you today. October - and our next get-together - can't come soon enough.
We love you!!!!!!!!! - Mom & Free
Thank you all so much for your kind words and love. I sure do appreciate it! And I'm feeling a bit better today. Love you all, too!
I have been thinking about you. At least there is some good news and you left out the good part where you don't have to sit and type all day. I don't think the whole needle/IV thing is wimpy at all. It hurts when people are digging around in your arm for a vein - it hurts really bad! Maybe we can go to lunch one day. I am going to have more time now because I will not be typing soon either. My last day of transcription is Aug. 29. I would love to see you. Hang in there Suz. I think about you all the time and wish you the best. If anybody can beat cancer, it is you. I know the bad days are hard especially if there are too many in a row. I will get in touch with you soon so we can go do something. Love, Jenny
Hi aunt Suzy,
Thanks for writing another update, allowing your geographically diverse family and friends to feel a closer connection to you! Glad to hear today was a better day, keep on being a champion!!!
Loving you lots,
Andrew (& Carrie & Brooklyn & Tribeca)
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