Wednesday, October 5, 2011

The Grand Ole Opry......

There are two ways of meeting difficulties: you alter the difficulties, or you alter yourself to meet them.  - Phyllis Battome

Well, today’s blog was supposed to be about how fabulous the Grand Ole Opry was last night.  I couldn’t wait to tell you how awesome it was to see and hear Carrie Underwood, Randy Travis, and Josh Turner (and the other stars, too).  HOWEVER, we never made it to the Grand Ole Opry. You know the leg pain I was telling you about in my last post?  Well, it wasn’t going away, so I figured I’d better call my onco’s office and the lymphedema therapist that I went to back in March to see what they suggested.  Dr. Sprawls was on vacation, but the oncology nurse got in touch with the nurse practitioner and then called me back.  She said it would be highly unusual to have lymphedema in my leg unless I had lymph nodes removed from my groin.  She said it sounded like I could have a blood clot and I needed to get to an ER ASAP.  Oh man!  When it rains, it pours!  We noticed there was a hospital about 10 minutes from the campground, but I had to call my insurance company first and make sure they were in my network.  They were!  So off we went to the ER.  As soon as I mentioned possible blood clot, they had me back in a room in about 3 minutes.  They were so efficient, and everyone was SOOO nice.  And I was sure to tell everyone that “ this CAN’T be serious because we have tickets to the Grand Ole Opry tonight,” and I told them who the lineup was.  They all said they’d do their best to get us there……and they were all joking around that they would take our tickets if we couldn’t make it.  Long story short – I had an ultrasound, and sure enough, I have a DVT (deep vein thrombosis)/blood clot in my right leg.  Wonderful news, eh?  Well, by the time radiology read the ultrasound, the ER doctor came and told us the news, the various nurses gave us all the instructions, they called various pharmacies to see where we could get the drugs, etc. etc., it was just too late to rush home, change our clothes, let the dogs out, and make it to the show.  Not to mention, we were pretty exhausted from the 5 hours spent in the ER.  So I simply sat in the ER and cried…..for a few minutes.  We had been looking forward to that show for SOOOO long, and it was such a huge disappointment to not be able to go.  We did call the Opry, and they did say they would refund our money under the circumstances.  Oh, I forgot to mention that the ER doctor said we could go to the show if I promised to get up every 15 minutes and walk around.  Now how do you think the people around us would like that??!!  Anyway, we’re still hoping we might be able to catch anotherwhile we’re here.  But I have to see a vascular surgeon tomorrow, so I’ll see what he says.  If I still have to get up every 15 minutes, I doubt we’ll do it.  We’ll see. 

To continue with this wonderful medical saga, I now have to give myself an injection (into the belly) of Lovenox every 12 hours (I’m letting Kenny do the honors – he did a good job at 0500 this morning – and what a trooper to get up at that hour to stick a needle in his wife’s belly), take Coumadin once a day, wear a compression stocking 24/7, and who knows what else I’ll find out tomorrow?!  The injections BURN LIKE HELL for about 5 minutes.  AND they almost cost me $375 for a 3-day supply!  (I have to do it for 10 days).  And don’t get me started on Big Pharma.  I can really get on a soap box with that!  Somehow the nurse got me on an assistance program, and it didn’t cost me anything.  Thank God! 

So much for getting away from doctors and “all that crap” for a little R&R!  We’re keeping our fingers crossed that the vascular guy doesn’t tell us tomorrow that we have to cut our trip short and head home and establish with a vascular guy there.  Now THAT would be a huge bummer!  But the ER doctor mentioned it as a possibility.  And I’m sure I’m going to have to have blood work at least weekly again and have the Coumadin adjusted accordingly, etc. etc.  Blah, blah, blah…..  In all honesty, I’m just really sick and tired of all this and just want to have some fun.  I’m hoping that’s imminent. 

Oh yeah, I forgot to mention the “icing on the cake” yesterday.  When I finally climbed into bed at 1930 to read my Kindle (a great book called “Thunder Dog”), I discovered my Kindle was BROKEN!  The screen was all messed up and just full of lines and weird characters.  I was absolultely beside myself.  Just couldn’t take any more.  I really just wanted to relax with a good book.  I said “screw it” and took a sleeping pill and went to sleep instead.  I called Amazon today, and my Kindle is still under warranty and they will ship me a new one right away – I’ll have it Friday.  Yay!  Some good news! 

I AM sitting outside by the lake right now, enjoying a beautiful day, so it’s not ALL bad.

The picture below was taken the day we did the backstage tour of the Grand Ole Opry.  Forgot to put it in with the other pictures the other day.  (Kenny is pretending to sing – not yawning…..)

You know you’re a cancer patient…….when your life is unpredictable (and you used to love being spontaneous)! 

On the backstage tour of the Grand Ole Opry

5 comments:

Penelope Z said...

Oh Suzy...we were all so happy that you &Kenny were finally able to relax and have some fun. And now this??? My heart goes out to you, honey. Hang in there with all the strength and fierce determination you've shown. We love you.

Anonymous said...

"Bummer" doesn't even begin to describe it - but such a relief that there was good care nearby and you got there in time (and you are welcome to snarl at me to stop being a Pollyanna). Lots of love - Donna

Jean said...

Dear Suzy,
Looking at that picture of you and Kenny on the Grand Ole Opry tour, one would never suspect that life was anything but a bed of roses for you right now. I am devastated that you have to go through all this - and especially devastated that we're up here and not down there with you, helping you in any way we can. We are anxiously awaiting word about what the vascular surgeon had to say today and I hope and pray it's good news and that you can stay where you are for a few more days and have some much-needed and long-awaited fun. But whatever the news is, I know you and Kenny will deal with it just like you've been dealing with everything else that has come your way. As I've said before, you are amazing and wonderful and I love you! I am thinking of you night and day and I just know there are better days right around the corner, because no one deserves them more than you.
Mom

Stuart said...

OK. What a drag! A total drag, Suzy. But, you know that already.

We are all thinking of you and sending positive thoughts your way - a constant stream of positive thoughts, swizzle.

I Love You!

Stuart

Anonymous said...

Suzy, After talking to you yesterday (and the day before and the day before that!!)....I am so darn happy that you and Kenny can stay in Nashville and were able to take a raincheck on the Grand Ole Opry.....next Tuesday is gonna be a blast!! I HATE seeing you go through more crap....it's just not fair. There is an end to this madness....and I promise it will be soon!!! (I'm gonna make time fly like there's no tomorrow!!) Before you know it, it will be Christmas and you'll be DONE!!! And we sure have SO much to look forward to in early '12...I just can't wait to get my arms around you with a big loving sister hug!!! Love you so much!!
Nancy